Early Childhood Intervention
This website is a place for families who are facing
challenges pertaining to their child's development and
growth.
It is a place to find answers and practical
suggestions. That's what Early Intervention Support is all
about.
Whether a family has a child with a challenging behavior,
a disability or developmental issue, childhood is short - it
should be savored and enjoyed.
Learn More:
Ask a Therapist
We understand developmental milestones and the challenges
of Special Needs children. We spend a great deal of time
with families understanding the inner workings of childhood
routines and interactions. Ask us about your child today!
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Aicardi Syndrome
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Diagnosis
Aicardi Syndrome is a rare
genetic disorder characterized by the partial or complete absence of
the structure that links the two hemispheres of the brain, the
corpus callosum.
The disorder affects only girls.
Onset of Aicardi Syndrome generally begins between the ages of 3 and
5 months with infantile spasms, a type of childhood seizure.
What are the symptoms of Aicardi Syndrome?
Symptoms include seizures, mental retardation, and lesions on
the retina of the eye that are specific to the disorder. Aicardi
Syndrome may be associated with other brain defects such as a
smaller than average brain and cavities or gaps in the brain
filled with cerebrospinal fluid.
Is there any treatment?
There is no cure for Aicardi Syndrome nor is there a standard
course of treatment. Treatment generally involves medical
management of seizures and programs to help parents and the
child cope with developmental delays.
What is the prognosis?
The prognosis for girls with Aicardi Syndrome varies according
to the severity of their symptoms.
Where can I get more information about Aicardi Syndrome?
Aicardi Syndrome Foundation
P.O. Box 3202
St. Charles, IL 60174
Phone 800-374-8518
Website:
http://www.aicardisyndrome.org
The Arc of the United States
1010 Wayne Avenue, Suite 650
Silver Spring, MD 20910
Phone 301-565-3842
Fax 301-565-3843 or -5342
E-mail Info@thearc.org
Website: http://www.thearc.org
National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
Phone 203-744-0100
Voice Mail 800-999-NORD (6673)
Fax 203-798-2291
E-mail
orphan@rarediseases.org
Website:
http://www.rarediseases.org
National Institute of Mental Health (NIMH)
National Institutes of Health, DHHS
6001 Executive Blvd.
Rm. 8184, MSC 9663
Bethesda, MD 20892-9663
Phone 301-443-4513/866-615-NIMH (-6464)
301-443-8431 (TTY)
Fax 301-443-4279
E-mail nimhinfo@nih.gov
Website:
http://www.nimh.nih.gov
Aicardi Syndrome Newsletter, Inc.
1510 Polo Fields Court
Louisville, KY 40245
Phone 502-244-9152
E-mail aicnews@aol.com
Website:
http://www.aicardisyndrome.org
March of Dimes Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone 914-428-7100/888-MODIMES (663-4637)
Fax 914-428-8203
E-mail
askus@marchofdimes.com
Website:
http://www.marchofdimes.com
National Eye Institute (NEI)
National Institutes of Health, DHHS
31 Center Drive
Rm. 6A32 MSC 2510
Bethesda, MD 20892-2510
Phone 301-496-5248
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Diagnosis
Learn More About Early Intervention
Therapy Options
Thankfully, there are many ways to deal with childhood developmental
delays and behaviors. These include in-home services, outpatient (you take
your child to a clinic), inpatient (following injury or surgery) and school
based services. Which type of therapy should you choose?
Visit our Therapy Options
area to learn more.
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