Early Childhood Intervention
This website is a place for families who are facing
challenges pertaining to their child's development and
growth.
It is a place to find answers and practical
suggestions. That's what Early Intervention Support is all
about.
Whether a family has a child with a challenging behavior,
a disability or developmental issue, childhood is short - it
should be savored and enjoyed.
Learn More:
Ask a Therapist
We understand developmental milestones and the challenges
of Special Needs children. We spend a great deal of time
with families understanding the inner workings of childhood
routines and interactions. Ask us about your child today!
Ask a Therapist
Lissencephaly
Back to Full List of Diagnosis
Lissencephaly, which literally means "smooth brain," is a rare,
gene-linked brain malformation characterized by the absence of
normal folds in the cerebral cortex and an abnormally small head.
Symptoms of Lissencephaly
Symptoms of the disorder may include:
- Unusual facial appearance
- Difficulty swallowing
- Failure to thrive
- Muscle spasms
- Seizures
- Severe psychomotor retardation
- In addition: hands, fingers, or toes may be deformed.
Lissencephaly may be associated with other diseases including isolated
lissencephaly sequence, Miller-Dieker syndrome, and Walker-Warburg syndrome.
Lissencephaly Treatment?
The severe malformations of the brain in lissencephaly most likely will
not respond to treatment. Normal supportive care may be needed to help with
comfort and nursing needs.
Seizures may be controlled with medication. Progressive hydrocephalus (an
excessive accumulation of cerebrospinal fluid in the brain) may require
shunting. If feeding becomes difficult, a gastrostomy tube may be
considered.
Where Can I Get More Information?
Lissencephaly Network
10408 Bitterroot Court
Ft. Wayne, IN 46804
Tel: 260-432-4310
Fax: 260-432-4310
E-mail LissencephalyOne@aol.com
Website: www.lissencephaly.org
March of Dimes Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203
E-mail askus@marchofdimes.com
Website: www.marchofdimes.com
National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291
E-mail orphan@rarediseases.org
Website: www.rarediseases.org
The Arc of the United States
1010 Wayne Avenue
Suite 650
Silver Spring, MD 20910
Tel: 301-565-3842
Fax: 301-565-3843 or -5342
E-mail Info@thearc.org
Website: www.thearc.org
Back to Full
List of Diagnosis
Learn More About Early Intervention
Therapy Options
Thankfully, there are many ways to deal with childhood developmental
delays and behaviors. These include in-home services, outpatient (you take
your child to a clinic), inpatient (following injury or surgery) and school
based services. Which type of therapy should you choose?
Visit our Therapy Options
area to learn more.
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