Early Childhood Intervention
This website is a place for families who are facing
challenges pertaining to their child's development and
growth.
It is a place to find answers and practical
suggestions. That's what Early Intervention Support is all
about.
Whether a family has a child with a challenging behavior,
a disability or developmental issue, childhood is short - it
should be savored and enjoyed.
Learn More:
Ask a Therapist
We understand developmental milestones and the challenges
of Special Needs children. We spend a great deal of time
with families understanding the inner workings of childhood
routines and interactions. Ask us about your child today!
Ask a Therapist
Rett Syndrome
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Rett Syndrome is a childhood neurodevelopmental disorder that
affects females almost exclusively.
What is Rett Syndrome?
Loss of muscle tone is usually the first symptom. Other early symptoms
may include problems crawling or walking and diminished eye contact.
As Rett Syndrome progresses, the child loses purposeful use of her hands
and the ability to speak. Compulsive hand movements such as wringing and
washing follow the loss of functional use of the hands.
The inability to perform motor functions is perhaps the most severely
disabling feature of Rett Syndrome, interfering with every body movement,
including eye gaze and speech.
Treatment of Rett Syndrome
There is no cure for Rett syndrome.
Treatment for the disorder is symptomatic, focusing on the management of
symptoms, and supportive care. Medication may be needed for breathing
irregularities and motor difficulties, and antiepileptic drugs may be used
to control seizures.
Occupational therapy, physiotherapy, and hydrotherapy may prolong
mobility. Some children may require special equipment and aids such as
braces to arrest scoliosis, splints to modify hand movements, and
nutritional programs to help them maintain adequate weight. Special
academic, social, vocational, and support services may also be required in
some cases.
The Prognosis of Rett Syndrome
The course of Rett Syndrome, including the age of onset and the severity
of symptoms, varies from child to child. Despite the difficulties with
symptoms, most individuals with Rett Syndrome continue to live well into
middle age and beyond. Because the disorder is rare, very little is known
about long-term prognosis and life expectancy.
Where Can I Get More Information?
International Rett Syndrome Foundation
4600 Devitt Drive
Suite 2B
Cincinnati, OH 45246
Phone 513-874-3020
800-818-RETT (7388)
E-mail admin@rettsyndrome.org
Website: www.rettsyndrome.org
Easter Seals
230 West Monroe Street
Suite 1800
Chicago, IL 60606-4802
Phone 312-726-6200 or 800-221-6827
Fax 312-726-1494
E-mail info@easterseals.com
Website: www.easterseals.com
National Institute of Child Health and Human Development (NICHD)
National Institutes of Health, DHHS
31 Center Drive
Rm. 2A32 MSC 2425
Bethesda, MD 20892-2425
Phone 301-496-5133
Fax 301-496-7101
Website: www.nichd.nih.gov
This material has been prepared by the National Institute of Neurological
Disorders and Stroke or any other federal agency.
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List of Diagnosis
Learn More About Early Intervention
Therapy Options
Thankfully, there are many ways to deal with childhood developmental
delays and behaviors. These include in-home services, outpatient (you take
your child to a clinic), inpatient (following injury or surgery) and school
based services. Which type of therapy should you choose?
Visit our Therapy Options
area to learn more.
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