Early Childhood Intervention
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challenges pertaining to their child's development and
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Spasticity
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List of Diagnosis
Spasticity is a condition in which certain muscles are
continuously contracted. This contraction causes stiffness or
tightness of the muscles and may interfere with movement, speech,
and manner of walking.
Causes of Spasticity?
Spasticity is usually caused by damage to the portion of the brain or
spinal cord that controls voluntary movement.
It may occur in association with spinal cord injury, multiple sclerosis,
cerebral palsy, damage to the brain because of lack of oxygen, brain trauma,
severe head injury, and metabolic diseases such as adrenoleukodystrophy,
amyotrophic lateral sclerosis (Lou Gehrig's disease), and phenylketonuria.
Symptoms of Spasticity
Symptoms may include hypertonicity (increased muscle tone), clonus (a
series of rapid muscle contractions), exaggerated deep tendon reflexes,
muscle spasms, scissoring (involuntary crossing of the legs), and fixed
joints. The degree of spasticity varies from mild muscle stiffness to
severe, painful, and uncontrollable muscle spasms.
How is Spasticity Diagnosed?
Your child's doctor and a physical therapist will evaluate your child.
During the evaluation, a videotape record of movement is made. Its helpful
while the child is being treated to review this tape to judge the
effectiveness of the treatment.
Spasticity Treatment
Medications, surgery and physical therapy might all be used to treat your
child, depending on the severity of the condition.
Physical therapy regimens may include muscle stretching
and range of motion exercises to help prevent shrinkage or shortening of
muscles and to reduce the severity of symptoms.
Surgery may be recommended for tendon release or to
sever the nerve-muscle pathway.
Your child's physical therapist might recommend aquatic therapy.
By using a pool heated to 92 to 96 degrees, the therapist continuously
supports your child's body. This enables deep relaxation and allows for the
expansive movement of the spine and body.
Myofascial release is a highly specialized stretching
technique that has been proved successful in treating some spasticity cases.
The fascia is a specialized system of the body that has an appearance
similar to a spiders web. The fascia is very densely woven, covering and
interpenetrating every muscle, bone, nerve, artery and vein, as well as all
of our internal organs, including the heart, lungs, brain and spinal cord.
When muscle fibers are injured, the fibers and the fascia which surrounds
the muscles become short and tight.
Physical therapists can use this stretching technique to release the
uneven tightness in the injured fascia which can reduce pain.
Botox Treatment Botox is a substance that can be
locally injected into specific muscles that are spastic (muscles that are
tight). It works by paralyzing the injected muscle. Botox does not cure
spasticity, but helps to decrease the tightness in muscles that have had an
injection. It lasts anywhere from three to six months.
What Can I Do as a Parent?
There are several different approaches to help manage spasticity in
children who have tight muscles. Here is a list of some options:
- Handling/Positioning:
Children who tend to extend: carry them in a fetal position, or on their
side with one of your arms in between their legs. When sitting, have
their knees above their hip joint, have them work on using tummy
muscles, like in games reaching for their toes and knees when lying on
their back. For children that point their toes and make it difficult to
get their orthoses on, you can try bending their knee and hip and take
the ball of their foot and turn it inward and up to try and decrease
spasticity.
Weight bearing through the arms and legs can decrease spasticity. What
this means is the child is supporting his or her weight through all the
joints of the arm, including the shoulder, elbow, and possibly the
wrist. An example would include, a child lying on his or her belly,
pushing up on their hands or elbows to look up, or a child crawling on
his or her hands and knees. Weight bearing through the legs means the
child is supporting his or her weight through the hips, knee, and
possibly the ankle. This could be as simple as standing up at the couch
or kneeling while crawling around.
Rotating the trunk can help decrease spasticity.
- Medication: Some medications can help decrease
spasticity, such as oral Baclofen, Tizanidine, or Dantrolene. Baclofen
can also be administered in a pump form, where an actual pump is
surgically placed inside a child's abdomen. It is the size of a hockey
puck and releases medicine on a 24-hour basis into the child's spinal
canal. It needs to be refilled about every 8-12 weeks. There is also
injectable medications, such as Botox or Phenol, that can decrease
spasticity as well.
- Heat, like a warm bath, can help decrease
spasticity and may make it easier to stretch.
- Stretching the spastic muscles to try and gain, or
at least maintain, the flexibility the muscle has can help.
- Electrical stimulation: A machine that can deliver
electrical stimulation to a muscle through electrodes to cause it to
tighten and contract, thus possibly improving muscle activity.
- Orthoses: Custom-made braces, made from a variety
of materials, can be worn during the day or night.
- Serial casting: When a child's muscles are short
due to spasticity, like in the gastrocnemius (calf muscle), a cast can
be made to go over the ankle and knee joint with the muscle placed in a
stretched position. This method is often used after Botox injections.
Each week, the cast is removed and the muscle is stretched maximally
each week. This process is repeated usually for six to eight weeks to
stretch a given muscle. Splints and orthotics are used after serial
casting to maintain the newly gained flexibility.
- Splinting: A custom-made brace is used to provide a
prolonged muscle stretch. This is usually worn at night.
- Dorsal Root Rhizotomy: A rhizotomy is a spinal
operation where a neurosurgeon cuts the dorsal root nerves that are
abnormal and involved with the spasticity. It requires extensive
physical therapy after surgery.
- Orthopedic Surgery: Spasticity can cause severe
joint malalignment, as well as contractures (muscles that are so tight
they cannot be straightened out). Surgery can lengthen muscles, relocate
tendons, fuse bones, and change bones (osteotomy) to help improve a
child's function.
Where Can I Get More Information?
March of Dimes Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone 914-428-7100 or 888-MODIMES (663-4637)
Fax 914-428-8203
E-mail askus@marchofdimes.com
Website: www.marchofdimes.com
National Multiple Sclerosis Society
733 Third Avenue
6th Floor
New York, NY 10017-3288
Phone 212-986-3240 or 800-344-4867 (FIGHTMS)
Fax 212-986-7981
E-mail nat@nmss.org
Website:
www.nationalmssociety.org
National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
Phone 800-999-NORD (6673)
203-744-0100 (Voice Mail)
Fax 203-798-2291
E-mail orphan@rarediseases.org
Website: www.rarediseases.org
United Cerebral Palsy (UCP)
1660 L Street, NW
Suite 700
Washington, DC 20036
Phone 202-776-0406 or 800-USA-5UCP (872-5827)
Fax 202-776-0414
E-mail national@ucp.org
Website: www.ucp.org
WE MOVE (Worldwide Education & Awareness for Movement Disorders)
204 West 84th Street
New York, NY 10024
Phone 212-875-8312 or 866-546-3136
Fax 212-875-8389
E-mail wemove@wemove.org
Website: www.wemove.org
Easter Seals
230 West Monroe Street
Suite 1800
Chicago, IL 60606-4802
Phone 312-726-6200 or 800-221-6827
Fax 312-726-1494
E-mail info@easterseals.com
Website: www.easterseals.com
Part of this information has been prepared by the National Institute of
Neurological Disorders and Stroke and the National Institutes of Health.
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Diagnosis
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Therapy Options
Thankfully, there are many ways to deal with childhood developmental
delays and behaviors. These include in-home services, outpatient (you take
your child to a clinic), inpatient (following injury or surgery) and school
based services. Which type of therapy should you choose?
Visit our Therapy Options
area to learn more.
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